Liam has a rare genetic condition called myostatin-related muscle hypertrophy, or muscle enlargement. The fact that Liam was adopted by a physician assistant’s family hundreds of miles from his birthplace — a stable family with the knowledge and means to give him all the food, nurturing, horseplay and love he needs to thrive — might be the most miraculous part of his story. Larson, the first physician to suspect Liam had myostatin-related muscle hypertrophy, said he was amazed by the toddler’s strength. An ultrasound performed on Liam when he was 14 months old revealed he had 40 percent more muscle than average, Dana Hoekstra said. Dana Hoekstra said she was prepared to allow Liam to be part of the Johns Hopkins study if it could have led to new treatments for muscular dystrophy patients. read more
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